{"id":2573,"date":"2018-09-10t11:17:59","date_gmt":"2018-09-10t10:17:59","guid":{"rendered":"\/\/www.aselpijama.com\/?p=2573"},"modified":"2018-09-10t11:17:59","modified_gmt":"2018-09-10t10:17:59","slug":"football-fans-stadium-challenge-for-brother-with-rare-disease","status":"publish","type":"post","link":"\/\/www.aselpijama.com\/football-fans-stadium-challenge-for-brother-with-rare-disease\/","title":{"rendered":"football fan\u2019s stadium challenge for brother with rare disease"},"content":{"rendered":"

press release: a football fan from alsager will walk from stoke city to sheffield wednesday in support of his brother who lives with a rare heart and lung disease.<\/p>\n

<\/p>\n

mark harris, 41, from rode heath, will be joined by six friends on the 55-mile trek from the bet365 stadium to hillsborough stadium on saturday 15 september.<\/p>\n

mark\u2019s brother paul has pulmonary hypertension (ph) \u2013 a serious condition affecting the heart and lungs \u2013 and the group are raising money for the beplay.asp (pha uk).<\/p>\n

they will leave stoke at 7pm and trek through the night to reach hillsborough in time for the 3pm stoke city v sheffield wednesday kick-off. after the game, they plan to visit the pulmonary vascular disease unit at the royal hallamshire hospital nearby, to say a personal thank you for the care that paul receives there.<\/p>\n

mark\u2019s brother paul, a 38-year-old civil servant, lives in kidsgrove in newcastle-under-lyme. he was diagnosed with ph in september 2015 and is hoping the challenge will help raise awareness of the little-known condition, which affects just 7,000 people in the uk.<\/p>\n

symptoms of ph typically involve breathlessness, fatigue, black-outs and swelling around the ankles, arms and stomach. the condition affects the ability to carry out basic tasks and get around.<\/p>\n

paul said: \u201cone of the hardest things about living with the disease is that no one really knows what it is. i look fine on the outside, so it\u2019s difficult for people to understand that it\u2019s a life-limiting condition. it can be very challenging mentally too, and that\u2019s something i have to deal with every single day.<\/p>\n

\u201ci\u2019m really chuffed that mark and the guys are taking on this walk to raise even more awareness, and money for the pha uk. \u201c<\/p>\n

the group of stoke city fans are no strangers to a long walk, having taken on similar challenges over the last two years. in 2016 they trekked across the pennines from alsager to the royal hallamshire hospital in sheffield and last year, they completed the return leg. in total, \u00a35,000 has been raised for the pha uk.<\/p>\n

mark, who is dean of higher education at the trafford college group, said: \u201cthe first walk started off as an idea after a few drinks, and it\u2019s now become an annual event. as paul\u2019s brother, it makes me feel like i can do something, as i can\u2019t help in a medical capacity. this year, we hope to include a pre-match walk around the pitch to finish off in front of 25,000 cheering fans!<\/p>\n

\u201cthe walk is in recognition of the support paul has received from both the royal hallamshire hospital and the pha uk. it\u2019s massively important that people understand more beplay体育ios版下载 . when i get asked in the street how my brother is doing, one of the frustrations is trying to explain what\u2019s going on underneath when he looks so well on the outside – so we\u2019re all hoping this challenge helps to raise awareness too.\u201d<\/p>\n

the team taking on the walk is made up of mark harris, marc fouldes, rob sandal, mark evans, noel scott, julian wilshaw and laurence greenhalgh.<\/p>\n

paul and his father steve will drive ahead in a car filled with supplies, and park up every three miles to deliver refreshments.<\/p>\n

the pha uk is based in sheffield and is the only charity in the uk dedicated to supporting the ph community made up of patients, their family and carers and nhs professionals.<\/p>\n

chair iain armstrong added: \u201cwe\u2019re very grateful to mark and his friends for taking on this challenge and we wish them the best of luck. it\u2019s vitally important that more people understand what life is like for people with pulmonary hypertension and events like this really help to get conversations going.\u201d<\/p>\n

to support the challenge, visit www.justgiving.com\/fundraising\/peaks4pha<\/a><\/p>\n

image below shows paul (left) and mark harris.<\/p>\n

\"\"<\/a><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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