{"id":22310,"date":"2023-03-13t14:49:46","date_gmt":"2023-03-13t14:49:46","guid":{"rendered":"\/\/www.aselpijama.com\/?p=22310"},"modified":"2024-08-19t10:01:17","modified_gmt":"2024-08-19t09:01:17","slug":"putting-patients-at-the-centre-of-clinical-trial-design","status":"publish","type":"post","link":"\/\/www.aselpijama.com\/putting-patients-at-the-centre-of-clinical-trial-design\/","title":{"rendered":"putting patients at the centre of clinical trial design"},"content":{"rendered":"

the pha uk has partnered with a health technology company to help make it easier for patients to take part in clinical trials.<\/p>

as a partner in the aparito patient group accelerator programme,<\/a> we are helping to identify new outcomes being measured by clinical trials, that are relevant to pulmonary hypertension.<\/p>

aparito digitises clinical trials through apps, video assessments and wearable devices, to ensure patients can take part without the need to travel to multiple appointments.<\/p>

we are working with them, and clinical advisors from the university of cambridge, to co-create outcome measures and digital biomarkers (data collected by patients themselves about disease management). technical solutions, including a bespoke mobile phone app, will make it easier for this data to be collected in a \u2018real-life\u2019 environment.<\/p>

a digitised ph-specific patient-reported outcome (pro) has already been produced through the partnership, and a digital walk test tool is currently being refined and reviewed.<\/p>

a panel of pha uk members are helping to develop this work, following a large-scale survey<\/a> we conducted last year to understand what patients want when it comes to the delivery of clinical trials.<\/p>

shaun clayton, director of membership support at the pha uk, said: \u201cwe are excited to partner with aparito to further assist the ph community, by co-developing new digital endpoints for clinical trials that could be collected in a real-life environment. we hope this will help ph patients participating in clinical trials to improve their trial experience and measure outcomes that better reflect how ph affects their day-to-day life.\u201d<\/em><\/em><\/p>

by developing technological solutions, new outcomes and digital biomarkers – designed with our ph community – we hope help shape clinical trials by putting patient needs at their centre.<\/p>

elisa ferrer mallol, patient advocacy manager at aparito said: \u201cwe are very excited to launch this new partnership with the pha uk as part of the accelerator programme. this is an excellent opportunity to co-develop patient-driven solutions to support the ph patient community\u201d.  <\/em><\/p>

\"\"<\/a><\/figure><\/div>","protected":false},"excerpt":{"rendered":"

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