{"id":54102,"date":"2023-10-25t14:23:04","date_gmt":"2023-10-25t13:23:04","guid":{"rendered":"\/\/www.aselpijama.com\/?page_id=54102"},"modified":"2024-01-29t13:16:56","modified_gmt":"2024-01-29t13:16:56","slug":"breathless-not-voiceless-what-it-means-to-live-with-ph-today","status":"publish","type":"page","link":"\/\/www.aselpijama.com\/research\/pha-uk-led-research\/breathless-not-voiceless-what-it-means-to-live-with-ph-today\/","title":{"rendered":"breathless, not voiceless: what it means to live with ph today"},"content":{"rendered":"<figure class=\"wp-block-image size-large\"><a href=\"\/\/www.aselpijama.com\/app\/uploads\/2023\/10\/report_oct23_column-scaled.jpg\"><img decoding=\"async\" width=\"1024\" height=\"424\" src=\"\/\/www.aselpijama.com\/app\/uploads\/2023\/10\/report_oct23_column-1024x424.jpg\" alt=\"\" class=\"wp-image-54114\" srcset=\"\/\/www.aselpijama.com\/app\/uploads\/2023\/10\/report_oct23_column-1024x424.jpg 1024w, \/\/www.aselpijama.com\/app\/uploads\/2023\/10\/report_oct23_column-300x124.jpg 300w, \/\/www.aselpijama.com\/app\/uploads\/2023\/10\/report_oct23_column-768x318.jpg 768w, \/\/www.aselpijama.com\/app\/uploads\/2023\/10\/report_oct23_column-1536x636.jpg 1536w, \/\/www.aselpijama.com\/app\/uploads\/2023\/10\/report_oct23_column-2048x849.jpg 2048w, \/\/www.aselpijama.com\/app\/uploads\/2023\/10\/report_oct23_column-600x249.jpg 600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/a><\/figure><h2 class=\"wp-block-heading\"><strong>welcome to the results of the uk\u2019s largest ever study into the lived experiences of pulmonary hypertension.<\/strong><\/h2><p class=\"has-cyan-color has-text-color\"><strong>scroll down to access the report&#8230;<\/strong><\/p><p>conducted in 2023, this is the pha uk\u2019s fourth major survey into the impact of this rare disease. <\/p><p>the findings in the report below reflect the experiences of 859 people with pulmonary hypertension, representing a 34% increase in the number of responses since 2017.<\/p><p>it is clear that the ph community wants to be heard, and this research provided a platform for their voices. please read the findings below and listen to them. <\/p><div style=\"position:relative;padding-top:max(60%,326px);height:0;width:100%\"><iframe allow=\"clipboard-write\" sandbox=\"allow-top-navigation allow-top-navigation-by-user-activation allow-downloads allow-scripts allow-same-origin allow-popups allow-modals allow-popups-to-escape-sandbox allow-forms\" allowfullscreen=\"true\" style=\"position:absolute;border:none;width:100%;height:100%;left:0;right:0;top:0;bottom:0;\" src=\"https:\/\/e.issuu.com\/embed.html?d=breathless_not_voiceless_report&#038;hideissuulogo=true&#038;pagelayout=singlepage&#038;u=phauk\"><\/iframe><\/div><p class=\"has-red-color has-text-color\"><\/p><p>the results of this research will help us set our strategic priorities for the next five years, underpinning our charitable activity and determining the direction of the pha uk. by sharing their voices in this survey, patients are helping us to help them.<\/p><p>the findings will also be used as an evidence base to campaign for access to new treatments or policy changes, and to protect specialist service provision.<\/p><p>we will be conducting sub-analysis of these findings to dig even deeper, and add to the significant value of this data set.<\/p><p>thank you to everyone who responded to this survey, proving once again that people with ph may be breathless, but they\u2019re certainly not voiceless.<\/p>","protected":false},"excerpt":{"rendered":"<p>welcome to the results of the uk\u2019s largest ever study into the lived experiences of pulmonary hypertension. scroll down to access the report&#8230; conducted in 2023, this is the pha uk\u2019s fourth major survey into the impact of this rare disease. the findings in the report below reflect the experiences of 859 people with pulmonary [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":11759,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-54102","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages\/54102"}],"collection":[{"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/comments?post=54102"}],"version-history":[{"count":9,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages\/54102\/revisions"}],"predecessor-version":[{"id":68764,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages\/54102\/revisions\/68764"}],"up":[{"embeddable":true,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages\/11759"}],"wp:attachment":[{"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/media?parent=54102"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}