{"id":27497,"date":"2023-06-02t11:36:07","date_gmt":"2023-06-02t10:36:07","guid":{"rendered":"\/\/www.aselpijama.com\/?page_id=27497"},"modified":"2023-06-02t11:36:39","modified_gmt":"2023-06-02t10:36:39","slug":"what-does-a-year-of-ph-look-like-for-you","status":"publish","type":"page","link":"\/\/www.aselpijama.com\/what-does-a-year-of-ph-look-like-for-you\/","title":{"rendered":"what does a year of ph look like for you?"},"content":{"rendered":"

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what does a year of ph look like for you?<\/h2>

we\u2019re planning an exciting new research project, to understand what can change during a year of having pulmonary hypertension.<\/strong><\/p>

ph365<\/em> will follow a cross-section of patients and their loved ones for 365 days, measuring clinical fluctuations, quality of life, disease changes and more.<\/p>

this project will help medical professionals – and others – to truly understand what life is like for people with ph outside of the clinic.<\/p>

research will begin at the start of 2024 and there will many different ways to take part, with different levels of involvement. <\/p>

we will be looking for individuals with ph and loved ones \/ carers too who are willing to complete questionnaires, engage in telephone interviews, complete video diaries, or share their thoughts over the course of the year.<\/p>

other methods of involvement will be developed, and we plan to include children with ph in this study too.<\/p>

to register your interest, please complete the form below and we will contact you with more information when it becomes available.<\/p>