{"id":1721,"date":"2017-08-29t14:34:08","date_gmt":"2017-08-29t13:34:08","guid":{"rendered":"\/\/www.aselpijama.com\/?page_id=1721"},"modified":"2022-11-15t15:28:28","modified_gmt":"2022-11-15t15:28:28","slug":"living-ph-report","status":"publish","type":"page","link":"\/\/www.aselpijama.com\/research-survey-work\/living-ph-report\/","title":{"rendered":"living with ph &#8211; the results of our biggest ever survey"},"content":{"rendered":"<p><\/p><p><strong>b<\/strong><strong>reathless, not voiceless.&nbsp;<\/strong><\/p><p>in 2016, 563 people affected by pulmonary hypertension shared their voices in our third major survey into what it&#8217;s&nbsp; like to live with the serious condition.<\/p><p>the results show just how much it impacts upon the lives of patients and their loved ones:<\/p><ul class=\"wp-block-list\"><li>60% of respondents said ph has a <strong>major impact<\/strong> on their overall quality of life<\/li>\n\n<li>48% of patients waited <strong>over a year<\/strong> after first experiencing symptoms before being diagnosed, and 40% saw <strong>four or more<\/strong> doctors<\/li>\n\n<li>63% said <strong>financial worries<\/strong> have an impact on their lives<\/li>\n\n<li>87% said their ph treatment and management has <strong>improved<\/strong> their overall quality of life<\/li><\/ul><p><em><strong>&#8220;this is a vital piece of research into what it means to live with ph. this report helps people to both imagine and understand the lived experience of ph from an individual&#8217;s perspective.&#8221;<\/strong> <\/em>&#8211; iain armstrong, chair, pha uk<\/p><h2 class=\"wp-block-heading\" id=\"read-the-full-report-and-watch-the-video-below\"><strong>read the full report and watch the video below<\/strong><\/h2><iframe allowfullscreen=\"\" allow=\"fullscreen\" style=\"border:none;width:100%;height:80vh;\" src=\"\/\/e.issuu.com\/embed.html?d=what_it_means_to_live_with_ph_today_for_issuu&amp;u=phauk\"><\/iframe><div style=\"height:24px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div><p>a summary version is also available. please contact the pha uk office on 01709 761450 or email office@phauk.org<\/p><figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"what it means to live with pulmonary hypertension today\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/bs8fzrlivu8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure><div style=\"height:25px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>","protected":false},"excerpt":{"rendered":"<p>breathless, not voiceless.&nbsp; in 2016, 563 people affected by pulmonary hypertension shared their voices in our third major survey into what it&#8217;s&nbsp; like to live with the serious condition. the results show just how much it impacts upon the lives of patients and their loved ones: &#8220;this is a vital piece of research into what [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":1526,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-1721","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages\/1721"}],"collection":[{"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/comments?post=1721"}],"version-history":[{"count":29,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages\/1721\/revisions"}],"predecessor-version":[{"id":15889,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages\/1721\/revisions\/15889"}],"up":[{"embeddable":true,"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/pages\/1526"}],"wp:attachment":[{"href":"\/\/www.aselpijama.com\/wp-json\/wp\/v2\/media?parent=1721"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}