make a pledgei will share my experiences of pulmonary arterial hypertension by talking to others about what it means to live with a rare disease. i will help those around me to understand that not all disabilities are visible. i will explain about rhc and living with my epoprostinal infusion. i will be in pain i will turn blue from time to time but i am still me and i will live my life to the fullest i can manage which will be difficult and different each day.
