#patientsfirst

hear their voices...

meet the experts by lived experience. here, uk pulmonary hypertension patients share their stories for delegates of the 7th world symposium on pulmonary hypertension…

read their words, hear their voices, and let’s ensure we put #patientsfirst – wherever they are in the globe.

“ph affects the people around you too”

chris's story

“if i could sum up my diagnosis journey in one word, it would be ‘unbelievable’”

luciana's story

#patientsfirst

hear their voices...

“ph affects the people around you too”

“if i could sum up my diagnosis journey in one word, it would be ‘unbelievable’”

“there are a lot of hidden costs with ph”

"i've learned how valuable life is"

“i cannot fault the support i’ve had for my cteph”

“breathlessness has affected me psychologically in a massive way”

“her illness has not stopped us living life”

“it was hard to stay positive with ph during the pandemic”

"ph has knocked my confidence"

"it took 8 years to get my diagnosis"

“the hardest part of living with ph is the frustration”

“ph is what we have, but it doesn’t have to be who we are”