posted on august 2nd 2021
our surveys to understand the impact of the covid-19 pandemic on the ph community have now closed, with over 1000 responses received.
with separate questions for adults with ph, their loved ones and householders, and parents / guardians of children with ph, the three surveys have attracted the largest response we have ever seen.
data analysis will now take place over the summer, with the headline findings revealed in october. we plan to carry out further qualitative research via telephone interviews, with a view to launching a comprehensive online report later in the year.
thank you to everyone who shared their experiences in this important piece of work. your voices, along with so many others, will now be part of history.
