at the beginning of this week, the uk government announced plans to give gps more authority by enabling them to make direct referrals for diagnostic tests related to a range of complaints including breathlessness – a key symptom of ph.
7 january 2025
the new pah treatment sotatercept has now been approved for use in the uk by the medicines and healthcare products regulatory agency (mhra).
2 january 2025
international materials technology business lucideon has made generous donations to our organisation, as part of a charity partnership with its director’s car club.
29 december 2024
the world's first self-help programme specifically for people with ph who struggle with depression or low mood is now available from our charity.
8 december 2024
for the last few months, we’ve been working in collaboration with the specialist centres, homecare delivery companies, and drug manufacturers gsk to bring you regular updates on supply issues related to flolan – which is also called epoprostenol. following an update on 3rd december 2024, we can now confirm that there are full, safe stock […]
4 december 2024
ph researchers from around the uk gathered on 1st november to share study findings, learn from each other’s work, and look to the future together…
12 november 2024
