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share your ph story

first-hand experiences from people living with or affected by ph can help other people understand or come to terms with the condition. 

maybe you have ph yourself, or care for someone with the condition. you may want to share your coping mechanisms, offer advice to others going through similar experiences, or talk about how a diagnosis has affected your family.

we often feature first-hand experiences of ph in our member magazine and on our lifestyle website

we also regularly produce booklets and guides, featuring people’s experiences of ph, so there are plenty of ways in which your story can help.

if you would like to share your experiences, please fill in the form below or email office@phauk.org.

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