there’s never been a more important time to lend your voice and experiences to ph research. as well as conducting our own studies to help people affected by ph live better lives, we are regularly approached by researchers from healthcare and academia, who recognise the importance of the patient voice.
we’re looking for a mix of people affected by ph in the uk – patients, and their loved ones too – who would be willing to help with these studies when possible.
you will be able to assist with most of these research opportunities from the comfort of your own home. they often involve completing surveys or questionnaires, and sometimes they may involve online or telephone chats, or focus groups. occasionally, you may receive an invitation to be involved in a different type of study, but it is unlikely you will be asked to take part in a clinical trial in this way.
if you join our research forum, we will send you opportunities via email, as and when they arise.
there is never any obligation to take part in any of the studies we tell you about; if it’s not for you, or not a good time, simply ignore the email and look out for the next!
please complete the form below if you would like to volunteer to help in this way. the information you provide here will help us tailor research opportunities to you.
all research invitations will come via ourselves at the pha uk. we will never pass your contact details onto researchers – or anyone else! you can view our full privacy policy here.
there may be times when we share non-identifiable information from the above form with researchers to assist with their study data. this will never include your name or email address (your contact details).
