uncategorised – pha - beplay最新官

comment: move to enable gps to make direct referrals for diagnostic tests

tue, 07 jan 2025 19:00:12 +0000

at the beginning of this week, the uk government announced plans to give gps more authority by enabling them to make direct referrals for diagnostic tests related to a range of complaints including breathlessness – a key symptom of ph. the move, which is part of the government’s wider bid to tackle nhs waiting lists, aims to speed up – where appropriate – access to tests by allowing patients to…

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mhra approval for sotatercept

thu, 02 jan 2025 11:42:05 +0000

the new pah treatment sotatercept has now been approved for use in the uk by the medicines and healthcare products regulatory agency (mhra). the announcement came just before new year, and it’s important to remember that the approval does not mean it can now be prescribed. the therapy is yet to be commissioned, and the next stage will involve the national institute for clinical excellence…

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corporate supporter spotlight: lucideon

sun, 29 dec 2024 19:26:21 +0000

international materials technology business lucideon has made generous donations to our organisation, as part of a charity partnership with its director’s car club. noor ali (pictured) is the chair of classic marques sports car club (cmscc), who have supported us through their last three seasons in memory of someone close to the team. he tells us more about his organisation and why you may be…

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new self-help programme to manage depression with ph

sun, 08 dec 2024 18:32:57 +0000

the world’s first self-help programme specifically for people with ph who struggle with depression or low mood is now available from our charity. developed with psychologists, and supported by the pha uk, this four-week programme consists of a series of workbooks based on cognitive behavioural therapy (cbt) to help change thinking habits and behaviours. the programme has been tested with…

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an update on the ongoing flolan supply issues

wed, 04 dec 2024 14:53:27 +0000

for the last few months, we’ve been working in collaboration with the specialist centres, homecare delivery companies, and drug manufacturers gsk to bring you regular updates on supply issues related to flolan – which is also called epoprostenol. following an update on 3rd december 2024, we can now confirm that there are full, safe stock levels at suppliers’ warehouses and homecare companies.

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a valuable meeting of minds

tue, 12 nov 2024 14:58:40 +0000

ph researchers from around the uk gathered in early november to share study findings, learn from each other’s work, and look to the future together… held at the chelsea physic garden in london, the annual ph research forum brings together people working in important and wide-ranging areas of pulmonary hypertension research. the event is now organised by the pha uk, and it’s also attended by…

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why compassion in healthcare matters

tue, 15 oct 2024 12:09:29 +0000

a blog by pha uk chair dr iain armstrong i remember my first day as a nurse well. i was in a dental white starch jacket, on ward central 4 at a hospital in sheffield which is now a rather exclusive and expensive housing development. on this day, i met george. george had lung cancer and had been admitted in an unkempt state and with lots of ‘chest pains’. i saw him sitting in his chair…

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united for quinn

thu, 05 sep 2024 10:21:08 +0000

an outpouring of love in support of an 11-year-old with ph has raised thousands for our charity and brought huge comfort to her family. quinn cattermole was diagnosed with the rare disease at the start of the year, and august saw friends and family come together to organise a sponsored cycle and family fun day – with another event on the way. in his own words, quinn’s uncle james shares their…

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downloadable designs to raise funds and awareness

sat, 10 aug 2024 13:34:08 +0000

talented pha uk member jamie beglin has produced a range of eye-catching motif designs that can be used on any type of clothing or merchandise to help get people talking beplay体育ios版下载 and to raise money for our charity. download the files and have them printed on anything – t-shirts, hoodies, bags, caps, mugs… the choice is yours! jamie’s partner nicki ross lives with pulmonary hypertension…

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what comes next for sotatercept?

tue, 30 jul 2024 14:09:00 +0000

lots of people are talking about the first-in-class ph drug sotatercept, which has recently been approved for use in america. here, pha uk chair dr iain armstrong explains what happens next – and what will be considered when it comes to making decisions for the uk… sotatercept is what’s known as ‘first-in-class’, and what makes it so exciting is that it’s treating part of the problem that’s not…

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