uncategorised – pha - beplay最新官

united for quinn

thu, 05 sep 2024 10:21:08 +0000

an outpouring of love in support of an 11-year-old with ph has raised thousands for our charity and brought huge comfort to her family. quinn cattermole was diagnosed with the rare disease at the start of the year, and august saw friends and family come together to organise a sponsored cycle and family fun day – with another event on the way. in his own words, quinn’s uncle james shares their…

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downloadable designs to raise funds and awareness

sat, 10 aug 2024 13:34:08 +0000

talented pha uk member jamie beglin has produced a range of eye-catching motif designs that can be used on any type of clothing or merchandise to help get people talking beplay体育ios版下载 and to raise money for our charity. download the files and have them printed on anything – t-shirts, hoodies, bags, caps, mugs… the choice is yours! jamie’s partner nicki ross lives with pulmonary hypertension…

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an update on the ongoing flolan supply issues

tue, 06 aug 2024 18:18:07 +0000

originally posted 6th august 2024. updated 10th september 2024. for the last few months, we’ve been working in collaboration with the specialist centres, homecare delivery companies, and drug manufacturers gsk to bring you regular updates on supply issues related to flolan – which is also called epoprostenol. a ‘pause in supply’ in march resulted in less of the drug being imported to the uk…

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what comes next for sotatercept?

tue, 30 jul 2024 14:09:00 +0000

lots of people are talking about the first-in-class ph drug sotatercept, which has recently been approved for use in america. here, pha uk chair dr iain armstrong explains what happens next – and what will be considered when it comes to making decisions for the uk… sotatercept is what’s known as ‘first-in-class’, and what makes it so exciting is that it’s treating part of the problem that’s not…

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another big tick for pha uk resources

fri, 19 jul 2024 12:14:13 +0000

following a rigorous assessment, our information resources have been re-certified with a patient information forum (pif) quality mark for the fourth year running. the ‘pif tick’ is only awarded to organisations who follow high quality standards when producing health information. to be awarded the prestigious quality mark, an organisation must show its health information production process meets…

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the global gathering driving ph care

thu, 04 jul 2024 13:49:18 +0000

there’s something rather special about over 1500 ph professionals, representing every corner of the world, coming together in the same place. here at the pha uk we were privileged to be invited to the 7th world symposia on pulmonary hypertension, hosted by the world health organisation and held in the spanish city of barcelona during the last weekend of june. we were one of a handful of patient…

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living a good life with ph: rashida’s story

mon, 24 jun 2024 10:15:14 +0000

rashida begum was diagnosed with pulmonary arterial hypertension in the spring of 2023, and after receiving specialist care, joy has returned to her world. this month mum-of-four from bradford spoke to us about the challenges of her journey, and explained why she now celebrates every little thing… read her story here…

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an open letter to work and pensions secretary mel stride

wed, 01 may 2024 13:43:35 +0000

on monday 29th april, the uk government announced proposals to make major changes to the disability-benefits system, in a bid to reduce spending on personal independence payments (pip). we know that many people with ph rely on pip, and they are concerned by this news. that’s why we’ve written to work and pensions secretary mel stride to express our disappointment – and indeed…

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the study taking strides towards personalised medicine for ph

thu, 18 apr 2024 09:49:02 +0000

‘phoenix’ is an innovative new trial testing how well pah drugs can be personalised for patients – and it’s set to roll out across more of the uk’s specialist centres soon. we spoke to dr frankie varian of the sheffield pulmonary vascular disease unit (pictured) to find out more about the study’s aims, and how it’s been shaped by patients from the start… the phoenix trial…

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five minutes with… advanced ph pharmacist josh miller

mon, 15 apr 2024 14:22:57 +0000

josh is an advanced pharmacist at the scottish pulmonary vascular unit and has been part of the service for six months, covering a colleague’s maternity leave. we caught up with him to talk teamwork, typical days, and crispy m&ms… my job covers lots of different aspects. the mainstay is making sure that we are using the most effective medicines and ensuring that this is done safely for every…

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