our important updates – pha - beplay最新官 //www.aselpijama.com beplay.asp tue, 07 sep 2021 08:13:39 +0000 en-gb hourly 1 https://wordpress.org/?v=6.6.2 covid-19 vaccines and ph: the facts //www.aselpijama.com/covid-19-vaccines-and-ph-the-facts/ //www.aselpijama.com/covid-19-vaccines-and-ph-the-facts/#respond tue, 08 dec 2020 08:29:31 +0000 //www.aselpijama.com/?p=7247 as well as playing a key role in the oxford covid-19 vaccine trial, dr mark toshner is also a pulmonary hypertension consultant at royal papworth hospital and a cambridge university lecturer. his experience of running ph trials landed him a pivotal role in the fight against coronavirus and on the day the news broke about the oxford vaccine being 90% effective, dr toshner turned down a bbc…

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]]> //www.aselpijama.com/covid-19-vaccines-and-ph-the-facts/feed/ 0 #distanceaware campaign to encourage respect of social space //www.aselpijama.com/distanceaware-campaign-to-encourage-respect-of-social-space/ //www.aselpijama.com/distanceaware-campaign-to-encourage-respect-of-social-space/#respond mon, 10 aug 2020 15:48:14 +0000 //www.aselpijama.com/?p=5609 a new nhs initiative is aiming to help people politely prompt ongoing distancing and respect of individual social space. the #distanceaware campaign is based around the use of a badge, in the shape of a shield, that allows people to subtly remind others to keep their distance. it can be used by anyone, but is especially useful for those who feel nervous or anxious about being in public – for…

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]]> //www.aselpijama.com/distanceaware-campaign-to-encourage-respect-of-social-space/feed/ 0 update: blood tests for ambrisentan, bosentan and macitentan //www.aselpijama.com/update-blood-tests-for-ambrisentan-bosentan-and-macitentan/ //www.aselpijama.com/update-blood-tests-for-ambrisentan-bosentan-and-macitentan/#respond fri, 03 jul 2020 12:41:34 +0000 //www.aselpijama.com/?p=5407 ph patients have been shielded during the covid19 pandemic. consequently in march, the uk centres all agreed to suspend blood testing for everyone prescribed an endothelin receptor antagonist (ambrisentan, bosentan or macitentan) . the current government advice is for shielding to end on august 1st. on the assumption that this date does not change we would like to reinstate regular blood…

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]]> //www.aselpijama.com/update-blood-tests-for-ambrisentan-bosentan-and-macitentan/feed/ 0 easing of shielding restrictions: our thoughts and advice //www.aselpijama.com/easing-of-shielding-restrictions-our-thoughts-and-advice/ //www.aselpijama.com/easing-of-shielding-restrictions-our-thoughts-and-advice/#respond thu, 25 jun 2020 10:49:55 +0000 //www.aselpijama.com/?p=5367 the below message comes from us all at the pha uk: on monday 22nd june, the uk government announced significant changes to their guidance for those shielding due to the coronavirus pandemic. you can read more about these changes here. at the pha uk, we welcome the easing of restrictions for people shielding with pulmonary hypertension. we know that staying at home and isolating from family and…

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]]> //www.aselpijama.com/easing-of-shielding-restrictions-our-thoughts-and-advice/feed/ 0 our letter to robert jenrick, secretary of state for housing, communities and local government //www.aselpijama.com/our-letter-to-robert-jenrick-secretary-of-state-for-housing-communities-and-local-government/ //www.aselpijama.com/our-letter-to-robert-jenrick-secretary-of-state-for-housing-communities-and-local-government/#respond fri, 12 jun 2020 09:37:55 +0000 //www.aselpijama.com/?p=5214 a few days ago we told you we had received a reply from miriam cates mp, in response to our letter calling for people with pulmonary hypertension not to be forgotten during the easing of lockdown restrictions. in it she told us she had written to robert jenrick, secretary of state for housing, communities and local government, to bring our concerns to his attention and to ask that the government…

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]]> //www.aselpijama.com/our-letter-to-robert-jenrick-secretary-of-state-for-housing-communities-and-local-government/feed/ 0 standing up for those who are shielding: an update //www.aselpijama.com/standing-up-for-those-who-are-shielding-an-update/ //www.aselpijama.com/standing-up-for-those-who-are-shielding-an-update/#respond tue, 09 jun 2020 11:17:25 +0000 //www.aselpijama.com/?p=5193 earlier this month, we wrote to miriam cates, mp for the constituency in which the pha uk is based. we asked how, as restrictions start to lift, the government is going to ensure that those still shielding are recognised within the strategy to ending uk lockdown. you can read our letter here. today, 9th june 2020, we received the reply below. we will now be writing to robert jenrick…

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]]> //www.aselpijama.com/standing-up-for-those-who-are-shielding-an-update/feed/ 0 changes to shielding guidance in england and wales //www.aselpijama.com/changes-to-shielding-guidance-in-england-and-wales/ //www.aselpijama.com/changes-to-shielding-guidance-in-england-and-wales/#respond mon, 01 jun 2020 08:35:54 +0000 //www.aselpijama.com/?p=5131 1st june 2020 it has been announced by the uk government that people who are shielding in england and wales are now allowed to go outdoors with a member of their household. remember though that people with pulmonary hypertension are in a high risk group so do try to stay at home as much as you can while you’re shielding. from monday 1st june, those living alone can meet with one person from…

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]]> //www.aselpijama.com/changes-to-shielding-guidance-in-england-and-wales/feed/ 0 standing up for those who are shielding //www.aselpijama.com/standing-up-for-those-who-are-shielding/ //www.aselpijama.com/standing-up-for-those-who-are-shielding/#respond fri, 29 may 2020 14:04:31 +0000 //www.aselpijama.com/?p=5117 today, 29th may 2020, we have sent the below letter to miriam cates, mp for the constituency in which the pha uk is based. dear miriam cates, question on behalf of people with the serious lung disease pulmonary hypertension i am writing to you as chair of a rare disease charity based in chapeltown, part of your constituency. our charity, the beplay.asp (pha uk)…

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]]> //www.aselpijama.com/standing-up-for-those-who-are-shielding/feed/ 0 important notice – inaccurate updates about requirements to shield //www.aselpijama.com/important-notice-inaccurate-update-from-the-national-shielding-service/ //www.aselpijama.com/important-notice-inaccurate-update-from-the-national-shielding-service/#respond wed, 27 may 2020 14:00:24 +0000 //www.aselpijama.com/?p=5085 updated 3rd june 2020 we have discovered that some people with pulmonary hypertension have been receiving notices advising them they no longer need to follow government advice to shield. these notices have come via a text message from the national shielding service or a letter from a gp practice. the notices state that consequently, food deliveries organised by national shielding services…

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]]> //www.aselpijama.com/important-notice-inaccurate-update-from-the-national-shielding-service/feed/ 0 care needed by patients on the use of iv cleaning products //www.aselpijama.com/care-needed-by-patients-on-the-use-of-iv-cleaning-products/ //www.aselpijama.com/care-needed-by-patients-on-the-use-of-iv-cleaning-products/#respond thu, 30 apr 2020 09:13:07 +0000 //www.aselpijama.com/?p=4941 a letter from the uk’s specialist ph centres and the pha uk as a result of the coronoavirus pandemic, there has been a huge rise in global demand for cleaning and hygiene equipment. shortages of gowns and masks have been well publicised in the media and everyone in healthcare has a duty to use protective equipment safely but responsibly. the products used by patients on intravenous (iv)…

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